My name is Elisha.  I am twenty-seven years old and have cystic fibrosis.  In July of 2011 I went to New York City to meet with a lung transplant team for a double lung transplant.  That is when I decided to start a blog to document everything I was about to go through.  I am not going to do this on a daily basis (I never was any good at keeping a daily dairy when I was younger lol), but I will write about what is going on every once in awhile to keep everyone up to date with where I am and how I am doing.

A lot of people don't really understand the struggles that come along with Cystic Fibrosis.  This even includes the people that are around me and know me very well.  For the most part, if you just see me, you wouldn't really know how sick I was.  I don't look sick and most of the time I don't act it either.  I put up a good front and barely ever complain about what is going on.  Some of it has to do with the fact that I am use to it.  This is my life...I have always had CF and I don't know anything different.  Another reason is because I want to live my life as much as I can.  I want to stay positive and not dwell on what is hard.  Things are getting more difficult for me as I get sicker... but I want to continue doing the things I love and I refuse to just completely stop . I know things are going to get harder, but that is not going to bring me down because there is light at the end of the tunnel. I have a second chance at life when I get these new lungs.

I am starting this blog for a couple of reasons.  One is to keep my friends and family up to date on everything that is going on through this lengthy process.  Also I want to do this for other people who are going to be getting lung transplants in the future.  Now I know every situation is different, but I hope this will be something that they can sit down read and learn something from.  Maybe get an idea of what to expect. or maybe reading this could give some insight to ease a little of the anxiety or just read because it is something they can relate to and know they are not alone.  I am going into this completely blind and learning as I am going, so if this helps one person out just a little I would be thrilled.

There are going to be some ups and downs throughout all of this, but one thing I promise to do is stay honest.  This includes what I am actually going through and how I feel.  So feel free to ask questions if something doesn't make sense, you don't understand something or if you are just interested. I am not too shy. :)  Either leave a comment using facebook or send me a message using the contact icon.